Focussing, A Psychosocial Intervention to Control on the Behaviour of Patient with the Behavioural Variant of Frontotemporal Dementia? A pilot study

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Taking care of people with the behavioural variant of frontotemporal dementia (bvFTD) is a challenge. So far there isn’t a psychosocial intervention available for bvFTD patients. A specialized geriatric care centre in Nijmegen, Joachim and Anna, develop a psychosocial intervention named Focussing. This explorative study investigated the relation between the intervention Focussing and the bvFTD patients behaviour, the distress of the caregiver caused by the disinhibited behaviour and the chosen assessments scales and observation tool were studied. Three patients, diagnosed with bvFTD, residing on a young onset dementia special care unit and a nurse participated. The behaviour of the participants were assessed with Dementia care mapping (DCM). In addition, the Frontal Behavioural Inventory (FBI), the Neuropsychiatric Inventorynursing home (NPI-NH) and the Middelheim Frontality scale (MFS) were used to create an overview of the participants behaviour, the Severe Impairment Battery - Short Version was used to assess the participants cognitive capabilities. Besides, the NPI-NH was used to indicate the distress caused by the disinhibited behaviour. A within-subject design was used whereby the first observational moment one participant got the intervention Focussing, expanding to all of the participant the third observation. The results assume that the intervention Focussing enables the caregivers to adjust the behaviour of the participants. Besides the distress caused by the disinhibited behaviour is related to the severity of the disinhibited behaviour. In addition, DCM and the assessment scales were useful to create a global overview of the participants behaviour and, in case of DCM, the intervention Focussing. Keywords: behavioural variant of frontotemporal dementia, psychosocial intervention Focussing, disinhibited behaviour, young onset dementia
Faculteit der Sociale Wetenschappen