Care for Children with Disabilities in the Global South. Theorising the context and situation of children with disabilities and their families in the Global South and defining the positionality of NGOs and PDIs as main care provid-ers.

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2023-04-20
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en
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This research contextualises the current situation for children with a (cognitive) disability in the Global South* and the role of NGOs and PDIs in providing care. The study employed constructivist grounded theory and included 16-semi structured interviews with NGOs and PDIs, experience experts, and parents, fieldwork and additional (non-)academic data. The findings reveal that economic, practical, and cultural challenges including stigma, are the main obstacles for children with disabilities and their families. Children with disabilities are often overrepresented in institutional care following a lack of accessible infrastructure, cultural and family-related issues, and legislative reasons. NGOs and PDIs play a crucial role in providing family-based care. Their often holistic approach simultaneously has a positive effect on reducing stigma. However, many organisations focus on children with disabilities, neglecting the needed support in transitioning into adulthood. The study highlights the importance of family-centred approaches to care. The study recommends the exchange of knowledge and closer collaboration among organisations to improve care provision for children with disabilities. Limitations of the study include the scope of countries covered. A suggestion for further research is to generalise specific processes among PDIs, seek quality guidelines, and explore the role of organisations in disability prevention. Key words: Disability care, Private Development Initiatives (PDIs), Family-based care, Africa, Asia
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Faculteit der Managementwetenschappen